Background:
Black mothers and birthing individuals face disproportionately high rates of maternal morbidity and mortality, often due to medical neglect and bias. Despite ongoing efforts, disparities persist due to systemic failures in recognizing and addressing patient-reported concerns. This study assesses lived experiences to identify patterns of mistreatment, analyze their impact on maternal outcomes, and design a feedback system that improves accountability and care quality.

Methods:
A mixed-methods approach was used to collect and analyze qualitative and quantitative data from 500 Black birthing individuals across multiple states. Surveys and in-depth interviews captured instances of delayed diagnoses, dismissive care, and racial bias. Data were coded and analyzed thematically to identify recurring patterns and inform the development of a patient-centered digital feedback system.

Results:
Preliminary findings show that 72% of participants reported feeling ignored or dismissed by providers, and 61% experienced delays in necessary medical interventions. Nearly 80% indicated that a structured reporting system would have empowered them to advocate for better care. Participants who had access to peer-shared experiences were 65% more likely to seek a second opinion or escalate concerns.

Conclusions:
Lived experience data is critical in shaping equitable maternity services. This research demonstrates how a culturally responsive digital feedback system can drive systemic change by holding providers accountable, informing policy, and fostering respectful, patient-centered maternity care. Integrating patient-driven data into maternal health frameworks is essential for reducing disparities, improving birth outcomes, and advancing public health equity.